The Patient and Client Council were asked to contribute to a webinar to launch the Special Interest Group (SIG) for Self-Management and Co-Production under the umbrella of the International Foundation for Integrated Care (IFIC), 23 October 2018. We presented a case study profiling our work on chronic pain...
The Patient and Client Council was asked to contribute to a webinar to launch the Special Interest Group (SIG) for Self-Management and Co-Production under the umbrella of the International Foundation for Integrated Care (IFIC) on 23 October 2018. We presented a case study profiling our work on chronic pain. What began as an avalanche of lived experience readily shared by some 2,500 service users and published in ‘The Painful Truth (February 2014), has turned into a series of significant outcomes led by service users to improve services and experiences regionally. We shared a case study profiling the ‘Pain’ supported self-management campaign which ran on ‘My NI’, a new government social web platform. As previously reported in ‘Updates’ this site presents an innovative approach to sharing government information.
The ‘pain’ campaign ran on this site from 25 March 2018 to 29 August 2018. The content covered 6 key themes distilled and developed within an inter-professional working group made up of service users; clinicians; AHP’s and voluntary sector support group colleagues. This encompassing group of contributors ensured quality and relevance in evidence based responses and recommendations made, now published in ‘The Painful Truth’ (February 2014). Survey results and qualitative data captured identified behaviour change among patients and a real appetite for support self-management solutions in this format.
We were able to share this campaign as a model of good practice. Our findings were well received and provided a useful insight for other nations as to what has been achieved in partnership with service users here in Northern Ireland.
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