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Caring for someone at the end of their life

As part of Palliative Care Week 2017 we have published our End of Life Care report, which outlines some key issues in relation to end of life care experiences. Care at the end of life is a significant and important element of all care and the evidence in this report describes how the care received at this time can have a significant impact on patients and their families.

There were three areas highlighted in our report that service users felt needed addressing: communication, coordination of care between healthcare staff, patients and their families, and training for staff who are providing end of life care.

These were the reported issues for end of life care for both unexpected deaths and patients who were terminally ill. These global issues are not new and a lot of work has already been completed to find sustainable solutions to these issues.

There are important messages for service providers, commissioners and policy makers that will be presented for discussion and agreement in the context of future planning of end of life.

Care at the end of life has improved significantly. The work done by the voluntary sector, particularly hospices, has played an important role in improving the approach and provision of this care.

There is a recognition that better end of life care is a responsibility of everyone in society if the wishes and needs of patients are going to be achieved. Creating opportunities for service users to be involved in designing and producing solutions is essential to better care.

I would like to thank everyone who took the time to talk to us. The Patient and Client Council will use this report to continue to influence how the planning and commissioning of services can be better informed by people and we will take every opportunity to make sure that the voices in this report are heard by those making decisions on the future of service delivery.

You can read the full report here


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John d. Norris 11-Sep-2017 at 23:44 hrs

I have been told that because I have inoperable cancer I have only months to live. Having scanned down the report I found that it, for the most part, deals very well with the consequences of one in my situation.
There is however one aspect that I feel has not been adequately dealt with and that is the involvement of 'Social Services' personnel. For the most part they enter the scene with the attitude of an Elephant caring for its calf. Once in their clutches one becomes a Number and is no longer a patient. Their whole aim in life would appear to make sure that an inordinate number of forms are completed and that the maximum amount of money is either extracted from the 'Number' or that applications for any grants are denied.Certainly there is no information voluntarily given as to what a Number is entitled to receive. Finally contact with those who are about to be bereaved is non existent