The All Ireland Institute of Hospice and Palliative Care is looking for new volunteers to join their forum Voices4Care. In this week’s blog, Briege Lyttle from Downpatrick shares her experience as a member…
Voices4Care is a forum made up of people with palliative care needs, their carers and citizens with an interest in improving palliative care across the island of Ireland. I became involved in Voices4Care as I was a carer for my husband Joe.
Following Joe’s death, I wanted to use my own experience to help others. I am now caring for my sister and through my involvement in Voices4Care, my whole perception of palliative care has changed. I would like to help to take away the fear and perception that palliative care is all doom and gloom. Rather, it is a practical and common-sense approach to providing everyone with the best quality of life when they are facing serious illness. Through my involvement in Voices4Care, I have felt more comfortable with having conversations with my sister and for us to be open about her wishes.
As well as the personal impact on my family, I have also been able to bring my views and experiences as a carer to inform a pharmacy group trying to improve medicines management for people with palliative care needs. I have really valued being part of Voices4Care and would encourage other people to get involved.
Voices4Care members have a key role in the palliative care programme in Northern Ireland - Palliative Care in Partnership - as the service user and carer group in this structure and the group represents a unique opportunity for people to shape the future of palliative care.
Further information about joining Voices4Care is available at www.aiihpc.org. Contact Brendan O’Hara, All Ireland Institute of Hospice and Palliative Care programme manager, at firstname.lastname@example.org or call 00353 (0) 1 4912948 by Thursday, 28 February 2019.
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